A U.S. survey of patients with Parkinson's disease: Satisfaction with medical care and support groups
Identifieur interne : 000846 ( Main/Exploration ); précédent : 000845; suivant : 000847A U.S. survey of patients with Parkinson's disease: Satisfaction with medical care and support groups
Auteurs : E. Ray Dorsey [États-Unis] ; Tiffini S. Voss [États-Unis] ; David R. Shprecher [États-Unis] ; Lisa M. Deuel [États-Unis] ; Christopher A. Beck [États-Unis] ; Irenita F. Gardiner [États-Unis] ; Margaret A. Coles [États-Unis] ; Richard S. Burns [États-Unis] ; Frederick J. Marshall [États-Unis] ; Kevin M. Biglan [États-Unis]Source :
- Movement Disorders [ 0885-3185 ] ; 2010-10-15.
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Abstract
Relatively little is known about patient satisfaction with Parkinson's disease (PD) care and the use of support groups in the United States. We surveyed members of the Muhammad Ali Parkinson's Disease Registry to assess satisfaction with medical care and to evaluate support group use. Satisfaction was measured on a 5‐point Likert scale, with high satisfaction defined as a four or five. We used multiple logistic regression to identify factors associated with high satisfaction and support group use. The response rate was 38% (726 of 1923). Most (57%) expressed high satisfaction with PD care. Individuals were most satisfied with the time their provider spent with them (61%) and PD education (56%) but least satisfied with prognostic information (35%) and information about non‐drug interventions (28%). Patients seeing a PD specialist were three times more satisfied with their care than those seeing a general neurologist (OR = 3.00, 95% CI: 1.92–4.71; P < 0.0001). Support group use is common, and 61% of survey respondents had attended one at any point. Caucasian race (OR = 2.85, 95% CI: 1.45–5.61), PD duration (OR = 1.05 per year, CI: 1.01–1.10), and PD specialist care (OR = 1.80, CI: 1.16–2.77) were associated with greater support group attendance. Overall, 49% reported high satisfaction with their support group. The greatest concerns were specific needs not being addressed (15%) and insufficient expertise within the group (14%). Most individuals with Parkinson's disease expressed high levels of satisfaction, especially with specialist care. Specialty care and improved education, in the clinic or through support groups, may enhance satisfaction and health care quality. © 2010 Movement Disorder Society
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DOI: 10.1002/mds.23160
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Shprecher</name><affiliation wicri:level="2"><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Neurology, University of Utah School of Medicine, Salt Lake City, Utah</wicri:regionArea><placeName><region type="state">Utah</region></placeName></affiliation></author><author><name sortKey="Deuel, Lisa M" sort="Deuel, Lisa M" uniqKey="Deuel L" first="Lisa M." last="Deuel">Lisa M. Deuel</name><affiliation wicri:level="2"><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Neurology, University of Rochester Medical Center, Rochester, New York</wicri:regionArea><placeName><region type="state">État de New York</region></placeName></affiliation></author><author><name sortKey="Beck, Christopher A" sort="Beck, Christopher A" uniqKey="Beck C" first="Christopher A." last="Beck">Christopher A. Beck</name><affiliation wicri:level="2"><country xml:lang="fr">États-Unis</country><wicri:regionArea>Department of Biostatistics and Computational Biology, University of Rochester Medical Center, Rochester, New York</wicri:regionArea><placeName><region type="state">État de New York</region></placeName></affiliation></author><author><name sortKey="Gardiner, Irenita F" sort="Gardiner, Irenita F" uniqKey="Gardiner I" first="Irenita F." last="Gardiner">Irenita F. Gardiner</name><affiliation wicri:level="2"><country xml:lang="fr">États-Unis</country><wicri:regionArea>Clinical Trials Coordination Center, University of Rochester Medical Center, Rochester, New York</wicri:regionArea><placeName><region type="state">État de New York</region></placeName></affiliation></author><author><name sortKey="Coles, Margaret A" sort="Coles, Margaret A" uniqKey="Coles M" first="Margaret A." last="Coles">Margaret A. Coles</name><affiliation wicri:level="2"><country xml:lang="fr">États-Unis</country><wicri:regionArea>Muhammad Ali Parkinson Center, Barrow Neurological Institute, St. Joseph's Hospital and Medical Center, Phoenix, Arizona</wicri:regionArea><placeName><region type="state">Arizona</region></placeName></affiliation></author><author><name sortKey="Burns, Richard S" sort="Burns, Richard S" uniqKey="Burns R" first="Richard S." last="Burns">Richard S. Burns</name><affiliation wicri:level="2"><country xml:lang="fr">États-Unis</country><wicri:regionArea>Muhammad Ali Parkinson Center, Barrow Neurological Institute, St. Joseph's Hospital and Medical Center, Phoenix, Arizona</wicri:regionArea><placeName><region type="state">Arizona</region></placeName></affiliation></author><author><name sortKey="Marshall, Frederick J" sort="Marshall, Frederick J" uniqKey="Marshall F" first="Frederick J." last="Marshall">Frederick J. 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Disord.</title><idno type="ISSN">0885-3185</idno><idno type="eISSN">1531-8257</idno><imprint><publisher>Wiley Subscription Services, Inc., A Wiley Company</publisher><pubPlace>Hoboken</pubPlace><date type="published" when="2010-10-15">2010-10-15</date><biblScope unit="volume">25</biblScope><biblScope unit="issue">13</biblScope><biblScope unit="page" from="2128">2128</biblScope><biblScope unit="page" to="2135">2135</biblScope></imprint><idno type="ISSN">0885-3185</idno></series><idno type="istex">2F6C7B6D54B4D18D07630BE8F37A63D3D961B2FE</idno><idno type="DOI">10.1002/mds.23160</idno><idno type="ArticleID">MDS23160</idno></biblStruct></sourceDesc><seriesStmt><idno type="ISSN">0885-3185</idno></seriesStmt></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Parkinson's disease</term><term>health services research</term><term>outcomes research</term><term>patient satisfaction</term><term>quality of life</term><term>support groups</term></keywords></textClass><langUsage><language ident="en">en</language></langUsage></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Relatively little is known about patient satisfaction with Parkinson's disease (PD) care and the use of support groups in the United States. We surveyed members of the Muhammad Ali Parkinson's Disease Registry to assess satisfaction with medical care and to evaluate support group use. Satisfaction was measured on a 5‐point Likert scale, with high satisfaction defined as a four or five. We used multiple logistic regression to identify factors associated with high satisfaction and support group use. The response rate was 38% (726 of 1923). Most (57%) expressed high satisfaction with PD care. Individuals were most satisfied with the time their provider spent with them (61%) and PD education (56%) but least satisfied with prognostic information (35%) and information about non‐drug interventions (28%). Patients seeing a PD specialist were three times more satisfied with their care than those seeing a general neurologist (OR = 3.00, 95% CI: 1.92–4.71; P < 0.0001). Support group use is common, and 61% of survey respondents had attended one at any point. Caucasian race (OR = 2.85, 95% CI: 1.45–5.61), PD duration (OR = 1.05 per year, CI: 1.01–1.10), and PD specialist care (OR = 1.80, CI: 1.16–2.77) were associated with greater support group attendance. Overall, 49% reported high satisfaction with their support group. The greatest concerns were specific needs not being addressed (15%) and insufficient expertise within the group (14%). Most individuals with Parkinson's disease expressed high levels of satisfaction, especially with specialist care. Specialty care and improved education, in the clinic or through support groups, may enhance satisfaction and health care quality. © 2010 Movement Disorder Society</div></front></TEI><affiliations><list><country><li>États-Unis</li></country><region><li>Arizona</li><li>Utah</li><li>Virginie</li><li>État de New York</li></region></list><tree><country name="États-Unis"><region name="État de New York"><name sortKey="Dorsey, E Ray" sort="Dorsey, E Ray" uniqKey="Dorsey E" first="E. Ray" last="Dorsey">E. Ray Dorsey</name></region><name sortKey="Beck, Christopher A" sort="Beck, Christopher A" uniqKey="Beck C" first="Christopher A." last="Beck">Christopher A. Beck</name><name sortKey="Biglan, Kevin M" sort="Biglan, Kevin M" uniqKey="Biglan K" first="Kevin M." last="Biglan">Kevin M. Biglan</name><name sortKey="Burns, Richard S" sort="Burns, Richard S" uniqKey="Burns R" first="Richard S." last="Burns">Richard S. Burns</name><name sortKey="Coles, Margaret A" sort="Coles, Margaret A" uniqKey="Coles M" first="Margaret A." last="Coles">Margaret A. Coles</name><name sortKey="Deuel, Lisa M" sort="Deuel, Lisa M" uniqKey="Deuel L" first="Lisa M." last="Deuel">Lisa M. Deuel</name><name sortKey="Gardiner, Irenita F" sort="Gardiner, Irenita F" uniqKey="Gardiner I" first="Irenita F." last="Gardiner">Irenita F. Gardiner</name><name sortKey="Marshall, Frederick J" sort="Marshall, Frederick J" uniqKey="Marshall F" first="Frederick J." last="Marshall">Frederick J. Marshall</name><name sortKey="Shprecher, David R" sort="Shprecher, David R" uniqKey="Shprecher D" first="David R." last="Shprecher">David R. Shprecher</name><name sortKey="Voss, Tiffini S" sort="Voss, Tiffini S" uniqKey="Voss T" first="Tiffini S." last="Voss">Tiffini S. Voss</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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